
Congressional Briefing on Progress in Sickle Cell Disease Treatment & Policy Implications
TUESDAY, JUNE 18, 2019 | 2:30 – 3:30 PM DIRKSEN SENATE OFFICE BUILDING, ROOM G50 RSVP: Betsy Foss-Campbell, bfoss@asgct.org Join us... Continue Reading

National Family, Patient, Public Sector, and Multi-employer Groups Join Effort to Protect Health Care Coverage
The Alliance to Fight the 40 | Don’t Tax My Health Care, a broad-based coalition committed to repealing the 40 percent... Continue Reading

Texas State Representative Jarvis Johnson Files Four Sickle Cell Disease Related Bills
Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative... Continue Reading

Jordin Sparks Discusses the Emotional and Social Impact of Sickle Cell Disease
Jordin Sparks is a Grammy-nominated, multi-platinum recording artist, but she also wants to spark a conversation about the emotional and social... Continue Reading

Charles F. Whitten: Black History Month SCD Pioneers 2019
Dr. Charles F. Whitten: A Physician. Medical pioneer. Founder and President Emeritus of the Sickle Cell Disease Association of America, Inc. Dr. Charles F.... Continue Reading

GBT Launches ACCEL Grants Program to Improve Access to Care for People with Sickle Cell Disease
—The Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL) Supports Novel Projects Aimed at Improving Access to High-Quality... Continue Reading

Dr. Doris Wethers Blazed a Trail for Newborn Testing for Sickle Cell Disease
Sickle Cell Disease Association of America, Inc. (SCDAA) celebrates the life and work of Dr. Doris L. Wethers who died at... Continue Reading

Emmaus Life Sciences Launches Its Commercial Co-Payment Assistance Program for Endari™
TORRANCE, Calif., Jan. 28, 2019 /PRNewswire/ — Emmaus Life Sciences, Inc. (Emmaus), a leader in sickle cell disease treatment, announced today that... Continue Reading

CRISPR Therapeutics and Vertex Announce FDA Fast Track Designation for CTX001 for the Treatment of Sickle Cell Disease
CRISPR Therapeutics and Vertex Pharmaceuticals Incorporated today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation... Continue Reading