MARAC Statement: Crizanlizumab (Adakveo)
July 7, 2023 – SCDAA’s Medical and Research Advisory Committee (MARAC) notes that the European Medicines Agency’s (EMA) Committee for Medicinal... Continue Reading
SCDAA Teams with MedicAlert Foundation
Sickle Cell Disease Association of America Teams with MedicAlert Foundation to Improve Emergency Outcomes During Sickle Cell Crises Nonprofits partner to... Continue Reading
Afimmune joins the SCD C.A.R.E.S. Consortium
Dublin, Ireland, 19 June 2023: Afimmune, a clinical stage biopharmaceutical company developing novel rare disease therapeutics, today announced it has been invited to... Continue Reading
CMO Speaks: Gene Therapy for SCD (Part 1)
CMO Speaks is a blog featuring the voices of SCDAA’s clinical leadership team. Part 1 of our Gene Therapy series was... Continue Reading
SCDAA Announces FY24 Legislative Priorities
Did you know that the federal government is poised to make some of the biggest decisions in sickle cell history right... Continue Reading
June 19, 2023, is Officially Sickle Cell Awareness Day in Maryland!
Maryland Governor Wes Moore has signed a proclamation to make June 19, 2023, Sickle Cell Awareness Day! This recognition goes a... Continue Reading
SCDAA hires member coordinator
The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell disease,... Continue Reading
Women’s History Month: Dr. Marilyn Hughes Gaston
This #WomensHistoryMonth, we are highlighting prominent women who have made lasting contributions to the SCD community. #WomenInMedicine #WomensHistoryMonth Meet Dr. Marilyn... Continue Reading
SCDAA names new board members
The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell, named... Continue Reading
Women’s History Month: Dr. Yvette Francis-McBarnette
This #WomensHistoryMonth, we are highlighting prominent women who have made lasting contributions to the SCD community. #WomenInMedicine #WomensHistoryMonth Meet Dr. Yvette... Continue Reading