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Black History Month: Our Current Member Organizations

  • February 27, 2025
  • Emma Day

As Black History Month ends, we would like to look to the future for our final #SCDHistoryHighlight at the amazing work... Continue Reading

Black History Month: National Sickle Cell Anemia Control Act

  • February 20, 2025
  • Emma Day

After our founding, one of SCDAA’s earliest goals was to ensure the National Sickle Cell Anemia Control Act of 1972 was... Continue Reading

Black History Month: Our Early Member Organizations

  • February 14, 2025
  • Emma Day

Last week, we learned about the origins of the Sickle Cell Disease Association of America, Inc. (SCDAA) and the vision for... Continue Reading

Editas Medicine Announces Strategic Transition

  • January 24, 2025
  • Emma Day

Editas Medicine recently announced that they will be making a strategic transition to a in vivo gene editing company. The company... Continue Reading

In Memory of Frank Reddick

  • January 2, 2025
  • Emma Day

It is with great sadness that SCDAA shares the news of the passing of Frank Reddick on Dec. 23, 2024. Frank... Continue Reading

SCDAA Statement: CMS Cell and Gene Therapy Access Model

  • December 5, 2024
  • Emma Day

Nearly one year ago, the Food and Drug Administration (FDA) approved two new gene therapies for the treatment of sickle cell... Continue Reading

Sickle Cell Awareness Month 2024

  • August 21, 2024
  • Emma Day

All across the country, our member organizations are hosting exciting events for Sickle Cell Awareness Month this September. Check out the... Continue Reading

CHW P.O.W.E.R Award

  • August 19, 2024
  • Emma Day

CLICK HERE TO LEARN MORE AND MAKE A NOMINATION Do you know a community health worker who exemplifies excellence and commitment... Continue Reading

WHO Publishes New Guidelines for SCD Management in Africa

  • July 17, 2024
  • Emma Day

The World Health Organization (WHO) recently published a comprehensive package of interventions for sickle cell disease management in Africa. The package... Continue Reading

SCDAA Statement: Know Your Rights in the ER

  • June 20, 2024
  • Emma Day

Know Your Rights in the Emergency Department – Biden Administration Releases New Guidance The Centers for Medicare & Medicaid Services (CMS)... Continue Reading