Advocacy Alert: Save the Sickle Cell Data Collection Program
Last week, the Trump administration announced drastic changes and reductions to federal health programs that support the sickle cell disease community.... Continue Reading
SCDAA Statement on the Measles Outbreak
SCDAA is aware of and monitoring the measles outbreaks that have been reported in several states. There is a fair amount... Continue Reading
Black History Month: Our Current Member Organizations
As Black History Month ends, we would like to look to the future for our final #SCDHistoryHighlight at the amazing work... Continue Reading
Black History Month: National Sickle Cell Anemia Control Act
After our founding, one of SCDAA’s earliest goals was to ensure the National Sickle Cell Anemia Control Act of 1972 was... Continue Reading
Black History Month: Our Early Member Organizations
Last week, we learned about the origins of the Sickle Cell Disease Association of America, Inc. (SCDAA) and the vision for... Continue Reading
Editas Medicine Announces Strategic Transition
Editas Medicine recently announced that they will be making a strategic transition to a in vivo gene editing company. The company... Continue Reading
In Memory of Frank Reddick
It is with great sadness that SCDAA shares the news of the passing of Frank Reddick on Dec. 23, 2024. Frank... Continue Reading
SCDAA Statement: CMS Cell and Gene Therapy Access Model
Nearly one year ago, the Food and Drug Administration (FDA) approved two new gene therapies for the treatment of sickle cell... Continue Reading
Sickle Cell Awareness Month 2024
All across the country, our member organizations are hosting exciting events for Sickle Cell Awareness Month this September. Check out the... Continue Reading
CHW P.O.W.E.R Award
CLICK HERE TO LEARN MORE AND MAKE A NOMINATION Do you know a community health worker who exemplifies excellence and commitment... Continue Reading