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Board Members Needed!

  • June 20, 2024
  • Emma Day

The success of any organization, for profit or not for profit, is measured by its leadership. As organizational leaders, we value... Continue Reading

SCDAA Statement: Know Your Rights in the ER

  • June 20, 2024
  • Emma Day

Know Your Rights in the Emergency Department – Biden Administration Releases New Guidance The Centers for Medicare & Medicaid Services (CMS)... Continue Reading

Statement on the Inclusion of DEI in Medical School Curriculum

  • May 14, 2024
  • Emma Day

SCDAA joins the National Medical Association, the American Medical Association, the American Association of Medical Colleges, and other groups, in advocating... Continue Reading

In Memory of Monica Rockwell

  • April 24, 2024
  • Emma Day

It is with great sadness that SCDAA shares the news of the passing of Monica Rockwell, executive director of SWGA Sickle... Continue Reading

SCDAA promotes Kevin Amado Jr.

  • March 26, 2024
  • Emma Day

The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading

The Nod to “Naz” Exhibit

  • March 7, 2024
  • Emma Day

During our 50th Annual National Convention in 2023, SCDAA was proud to exhibit the artwork of Hertz Nazaire at a pop-up... Continue Reading

CMO Speaks: Cyberattacks on Health Care Companies

  • March 5, 2024
  • Emma Day

Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis... Continue Reading

SCDAA Joins the IGT Patient Advocacy Advisory Council

  • March 4, 2024
  • Emma Day

SCDAA is pleased to announce that we have joined the Insitute for Gene Therapies (IGT) Patient Advocacy Advisory Council. IGT advocates... Continue Reading

15K in a Day for Rare Disease Day 2024

  • February 23, 2024
  • Emma Day

HELP US REACH OUR GOAL – DONATE TODAY Did you know that February 29 is Rare Disease Day? This important event... Continue Reading

CMMI Announces the Cell and Gene Therapy Access Model

  • January 30, 2024
  • Emma Day

Today, the Centers for Medicare and Medicaid Innovation (CMMI) announced the launch of their new Cell and Gene Therapy Access Model,... Continue Reading