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February 2019
Event Date Test
Event Date Test - event date Feb 28 11am EST, duration 30mins
Find out more »April 2019
2019 Advocacy Day
Please join the Sickle Cell Disease Association of America, Inc. (SCDAA) as we advocate for those affected by sickle cell disease. This year’s Advocacy Day campaign will focus on key legislative issues that are important to individuals living with SCD and their families, including promoting stable funding for research, better healthcare access, expanded programs, and increased education and awareness for the SCD community and programs throughout our nation.
Find out more »May 2019
6th Annual Walk with Stars & Move-A-Thon Kick-Off Party
Join the Sickle Cell Disease Association of America, Inc. (SCDAA) at our National “Move for Sickle Cell” Kick-off Party for the 6th Annual Walk With The Stars & Move-a-thon on Wednesday, April 17, 2019! Come and learn more about “Moving for Sickle Cell” and how to start a team and to get your family and friends involved! You'll enjoy food and fun, and inspiring speakers, while meeting other participants and getting tips and tools to help advance the cause for a universal cure. The “Move…
Find out more »June 2019
Congressional Briefing on Progress in Sickle Cell Disease Treatment & Policy Implications
TUESDAY, JUNE 18, 2019 | 2:30 – 3:30 PM DIRKSEN SENATE OFFICE BUILDING, ROOM G50 RSVP: Betsy Foss-Campbell, bfoss@asgct.org Join us for updates on Gene therapy approaches presented by prominent scientists in the field How policymakers can support the development of treatment options for sickle cell disease SPEAKERS Tim Scott, United States Senator Francesca Cook, MPH, Government Relations Committee member, ASGCT; Senior Director, Pricing and Market Access, REGENXBIO Julie Kanter, MD, Director of Adult Sickle Cell Program; Associate Professor of Hematology and Oncology, University…
Find out more »6th Annual Walk with the Stars & Move-A-Thon
Did you know that Walk With the Stars is SCDAA’s largest event dedicated to finding better treatments and a cure for sickle cell disease? Every dollar that you raise goes towards preventing the complications of sickle cell disease through awareness, education, advocacy and research! Sickle Cell Disease Association of America, Inc. will host the 6th Annual Walk with the Stars, a 1K, 2K and 5K walk/run, on June 22, 2019 at the Canton Waterfront Park, 3001 Boston Street, Baltimore, MD 21224.…
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