Gene Therapy: What You Need to Know (Warrior FAQs)
Download a Printable Brochure | Download a Printable Statement Two gene therapies were approved in Dec. 2023 by the Food and... Continue Reading
SCDAA Statement About Gene Therapy Approval
On Dec. 8, 2023, the Food and Drug Administration (FDA) approved two cell-based gene therapies for sickle cell disease (SCD), Casgevy... Continue Reading
Gene Therapy is Approved!
We are very excited to share that today, Dec. 8, the Food and Drug Administration approved two gene therapies to treat... Continue Reading
SCDAA Statement on Exa-cel Gene Therapy
On October 31, 2023, the Food and Drug Administration is poised to make a landmark decision about exagamglogene autotemcel (exa-cel) gene... Continue Reading
CDC SCD Pregnancy Fact Sheets
Learn more about how to stay healthy leading up to, during and after a pregnancy with these newly developed fact sheets... Continue Reading
In Memory of Dr. Lennette Benjamin
The Sickle Cell Disease Association of America, Inc., (SCDAA) is saddened to hear the news of the passing of Dr. Lennette... Continue Reading
CMO Speaks: Making ED Care Better for SCD – Progress in 2023
Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis... Continue Reading
New Opiate Dosing Calculator for Health Care Providers
NEW RESOURCE AVAILABLE: This tool from the National Alliance of Sickle Cell Centers can help sickle cell providers make important decisions... Continue Reading
CMO Speaks: Gene Therapy for SCD (Part 2)
Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This is part two of a three-part... Continue Reading
MARAC Statement: Health Insurance Coverage for MSD SCT
MARAC Statement: Health Insurance Coverage for Hematopoietic Stem Cell Transplant for Sickle Cell Disease from HLA-matched Sibling Donor (MSD HCT) Sept.... Continue Reading