300 million people worldwide live with a rare disease. In the United States, 100,000 of those people have sickle cell disease. Mark your calendar to stand with us on Rare Disease Day on February 28! Find out how to get involved in this worldwide movement.

Share Your Story

Show the world what it means to be a sickle cell warrior! Share your story on your social media platforms and use the hashtags #RareDiseaseDay and #SickleCellisRare. Some things to think about when writing your story:

  • What does sickle cell mean to you?
  • What impact does sickle cell have on your life?
  • What do you wish other people knew about sickle cell?
  • What is something that people think is true about sickle cell but isn’t?

You can also submit your story to the Rare Disease Day website here.

Join Our $20K for Rare Disease Day Campaign

Throughout Rare Disease Month, SCDAA has set an ambitious goal to raise $20,000 by Rare Disease Day to support our advocacy, education and outreach efforts. Thanks to a generous matching gift, every donation up to $10,000 will be doubled! This means that your contribution can have twice the impact in advancing SCDAA’s vital programs. Will you join us in making a difference for sickle cell warriors as we celebrate our place in the rare disease community? Click here to make a gift today!

Don’t forget to get your friends involved too – share information about this campaign and help us increase our impact by posting on your social media. Click here for messages and images!

Make sure to tag SCDAA so that we can thank you for your support: