In recognition of Sickle Cell Disease Association of America (SCDAA), Inc.’s 50th anniversary, we have launched this limited, three-part speaker series, Masterclass on Sickle Cell Disease. Leading experts in sickle cell disease focus on novel concepts surrounding disease-modifying and curative therapies and their impact on those living with sickle cell disease. The goal is to approach key sickle cell topics with a fresh, innovative perspective through discussions that have not yet been had. Learn more about the series here.
UPCOMING SESSIONS
Anemia Falciforme: La Experiencia Latina
Sickle Cell Disease: The Latino Experience
Masterclass En Español with English Translation
13 Julio 2024 | July 13, 2024
12 – 1:30 P.M. EST
Tratamiento de la anemia falciforme Ofelia Alvarez, M.D.
Treatment of Sickle Cell Disease
Recursos disponibles y donaciones de sangre y médula Laura De Castro, M.D.
Available resources and marrow and blood donations
Consejos y experiencia de una mamá cuidadora Sra. Ivett Martinez
Experience and advice coming from a mom caretaker
Experiencia de una paciente con falcemia Srta. Sarai Santiago
A patient’s experience with sickle cell anemia
Discusión del panel, preguntas de la audiencia Panel y participantes
Panel discussion, questions from the audience
PREVIOUS SESSIONS
2023 Seminar One
Gene Therapy: A Journey Forward
Our panelists, including SCDAA Chief Medical Officer Lewis Hsu, M.D., and Edward Donnell Ivy, M.D., SCDAA vice chief medical officer, explore the role of gene therapy in our journey forward. The discussion is moderated by Andrew Campbell, M.D., director of the Children’s National Comprehensive Sickle Cell Disease Program.
2023 Seminar Two
All Things Considered – SCD Treatment: A Personal Choice
Co-hosts Teonna Woolford and Dr. Wanda Whitten-Shurney will discuss the many considerations that go into making a decision to choose disease modifying treatments or curative therapies. Panelists will include speakers who share their lived SCD experiences, the choices they made and why.
2023 Seminar Three
The Perfect Red Blood Cell: An SC Dream Redefined
This session was held live at our Annual National Convention in October 2023. The session was moderated by Kim Smith-Whitley, M.D., and featured panelists Vence Bonham, J.D., Tangela Roberts, Teonna Woolford and Andre Harris.
2024 Seminar One
Global Implications of Gene Therapy: How You Can Prepare
Presented in collaboration with the Global Alliance of Sickle Cell Disease Organizations
With more countries offering gene therapy, sickle cell community members all around the world are wondering, “how do I prepare myself or my loved ones for this treatment?” Getting access to timely and accurate information can be a challenge. Together, the Sickle Cell Disease Association of America, Inc., (SCDAA) and Global Alliance of Sickle Cell Disease Organizations (GASCDO) have collaborated to bring experts from the clinical, warrior and caregiver communities together to provide up-to-date, relevant information to the global sickle cell community. Participants will learn what they need to know to make an informed decision about this potentially curative and life-changing therapy and have their questions answered.