Understanding the Need for Improved Patient Access to Sickle Cell Disease Treatment Options
Hosted by Fulcrum Therapeutics
Thursday, March 19, 2026
10:00 to 11:00 AM ET
Rayburn House Office Building, Room 2043
This briefing will bring together clinicians, patient advocates, researchers, and policy leaders for a moderated panel discussion on the current treatment landscape for sickle cell disease and what Congress can do to improve access and outcomes for the 100,000 Americans living with this condition. SCDAA President and CEO Regina Hartfield is one of four featured panelists.
Sickle cell disease disproportionately impacts Black and Latino communities and remains one of the most underfunded and under-resourced conditions in federal health policy. This is a conversation worth being in the room for.
