SCDAA Statement: Know Your Rights in the ER
Know Your Rights in the Emergency Department – Biden Administration Releases New Guidance The Centers for Medicare & Medicaid Services (CMS)... Continue Reading
Statement on the Inclusion of DEI in Medical School Curriculum
SCDAA joins the National Medical Association, the American Medical Association, the American Association of Medical Colleges, and other groups, in advocating... Continue Reading
In Memory of Monica Rockwell
It is with great sadness that SCDAA shares the news of the passing of Monica Rockwell, executive director of SWGA Sickle... Continue Reading
SCDAA promotes Kevin Amado Jr.
The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading
The Nod to “Naz” Exhibit
During our 50th Annual National Convention in 2023, SCDAA was proud to exhibit the artwork of Hertz Nazaire at a pop-up... Continue Reading
CMO Speaks: Cyberattacks on Health Care Companies
Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis... Continue Reading
SCDAA Joins the IGT Patient Advocacy Advisory Council
SCDAA is pleased to announce that we have joined the Institute for Gene Therapies (IGT) Patient Advocacy Advisory Council. IGT advocates... Continue Reading
15K in a Day for Rare Disease Day 2024
HELP US REACH OUR GOAL – DONATE TODAY Did you know that February 29 is Rare Disease Day? This important event... Continue Reading
CMMI Announces the Cell and Gene Therapy Access Model
Today, the Centers for Medicare and Medicaid Innovation (CMMI) announced the launch of their new Cell and Gene Therapy Access Model,... Continue Reading
Sickle Cell Disease is Not a Joke
This weekend’s Saturday Night Live skit about the recent historic approvals of potentially curative gene therapies for sickle cell disease is... Continue Reading