CMO Speaks: Cyberattacks on Health Care Companies
Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis... Continue Reading
SCDAA Joins the IGT Patient Advocacy Advisory Council
SCDAA is pleased to announce that we have joined the Institute for Gene Therapies (IGT) Patient Advocacy Advisory Council. IGT advocates... Continue Reading
15K in a Day for Rare Disease Day 2024
HELP US REACH OUR GOAL – DONATE TODAY Did you know that February 29 is Rare Disease Day? This important event... Continue Reading
CMMI Announces the Cell and Gene Therapy Access Model
Today, the Centers for Medicare and Medicaid Innovation (CMMI) announced the launch of their new Cell and Gene Therapy Access Model,... Continue Reading
Gene Therapy: What You Need to Know (Warrior FAQs)
Download a Printable Brochure | Download a Printable Statement Two gene therapies were approved in Dec. 2023 by the Food and... Continue Reading
SCDAA Statement on Exa-cel Gene Therapy
On October 31, 2023, the Food and Drug Administration is poised to make a landmark decision about exagamglogene autotemcel (exa-cel) gene... Continue Reading
CDC SCD Pregnancy Fact Sheets
Learn more about how to stay healthy leading up to, during and after a pregnancy with these newly developed fact sheets... Continue Reading
In Memory of Dr. Lennette Benjamin
The Sickle Cell Disease Association of America, Inc., (SCDAA) is saddened to hear the news of the passing of Dr. Lennette... Continue Reading
New Opiate Dosing Calculator for Health Care Providers
NEW RESOURCE AVAILABLE: This tool from the National Alliance of Sickle Cell Centers can help sickle cell providers make important decisions... Continue Reading
SCDAA and MedicAlert Foundation Launch Pilot Program
Leading Sickle Cell Organization and MedicAlert Foundation Launch Pilot Program to Improve Emergency Care During Sickle Cell Pain Crises Non-profits partner to... Continue Reading